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Psychological Encyclopedia

Prolonged Grief Disorder in Children and Teens: Signs and Assessment

6 days ago
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Author: Angela Bogdanova · Published: October 9, 2026 · Editorial Policy

Research cluster: Grief, Loss & Bereavement · Written by Artificial Sapiens

Prolonged grief disorder (PGD) in children and teens describes an enduring, intense grief response after the death of someone close, accompanied by clinically significant distress or impairment and assessed within the young person's developmental, family, and cultural context. A child who misses a parent months after a death has not automatically developed a disorder. The clinical question concerns the persistence, intensity, pattern, and consequences of separation distress, alongside other possible explanations. The American Psychiatric Association recognizes that children's preoccupation may center on how the person died, rather than only memories of the person.

For a family wondering whether a young person needs professional help, two ideas can coexist: powerful grief is an understandable response to a major death, and some children experience a pattern severe enough to benefit from specialized assessment and treatment. A timely assessment can explore risk, support, depression, traumatic stress, school functioning, and grief itself without deciding in advance that the child has PGD.

What is prolonged grief disorder in childhood and adolescence?

Bereavement is the circumstance of losing someone to death. Grief is the psychological, emotional, physical, behavioral, and social response. Mourning describes how grief is expressed and recognized through personal and cultural practices. Prolonged grief disorder is a defined clinical condition within a subset of bereaved people, characterized by sustained separation distress and associated symptoms that substantially affect life. These distinctions matter because grief, bereavement, and mourning describe overlapping experiences, while PGD requires a clinical threshold. The DSM-5-TR comparison and clinical review details its diagnostic structure.

For diagnostic criteria, duration thresholds, and the broader clinical framework across ages, see Prolonged Grief Disorder: Symptoms and Diagnosis.

Childhood bereavement can follow the death of a parent, grandparent, sibling, friend, caregiver, or another emotionally important person. The child's relationship to the person, dependence on them, developmental stage, circumstances of death, surviving caregivers, and subsequent changes in housing, routines, or safety all shape what follows. The young person may also be facing multiple losses at once, such as moving schools after a caregiver dies. Clinical assessment should consider those secondary changes rather than treating every difficulty as a grief symptom.

PGD is specifically associated with death. Intense distress after divorce, migration, the disappearance of a loved one, or other non-death loss also deserves attention, although such circumstances do not themselves satisfy the death requirement in PGD diagnostic systems.

How can prolonged grief look different in children and teens?

Younger children may communicate through play, behavior, body complaints, changes in attachment behavior, or repeated questions. An adolescent may describe intrusive thoughts, guilt, loneliness, anger, avoidance, identity changes, or an inability to imagine a meaningful future. The presence of any one of these experiences does not diagnose PGD. What matters is how several features fit together over time, their relation to the deceased person, their severity, and their effect on development. The review of pediatric grief measures emphasizes the developmental challenges involved in measuring these experiences.

Separation distress and longing

A child may repeatedly wish that the person would return, search for reminders of them, speak as though reunion is imminent, or feel unable to tolerate their absence. A teenager may spend large portions of the day yearning for the deceased or become absorbed in the relationship that can no longer continue in its previous form. Desire for reunion can occur in ordinary grief; clinical concern rises when separation distress remains intense, pervasive, persistent, and seriously disruptive.

Persistent preoccupation with the death

Some young people repeatedly think about the person who died; others focus on the circumstances of the death. A young person might return to questions about a medical emergency or accident, seek every detail, or struggle to move attention away from the event. In DSM-5-TR, preoccupation with the circumstances of the death is specifically recognized as a possible youth presentation. Assessment must distinguish this from trauma-related intrusive memories, curiosity, and an understandable search for an explanation.

Difficulty accepting the death and avoiding reminders

Disbelief may involve feeling that the death is unreal, interpreting ordinary events as signs that the person is about to return, or refusing reminders that make the loss feel final. Avoidance may appear as refusing to enter a room, see photographs, hear the deceased person's name, attend a ceremony, or discuss what happened. Avoidance can serve many purposes and should be interpreted through the child's emotional capacity, family customs, trauma exposure, and circumstances. A child sometimes needs a temporary break from painful material as part of flexible coping.

Emotional pain, loneliness, and disruptions in identity

Intense sorrow, guilt, anger, bitterness, or profound loneliness may accompany PGD. An older child may feel disconnected from peers whose families seem intact; a teen may describe having lost part of their identity along with the person who died. Emotional numbness, reduced interest in relationships, or difficulty envisioning the future can also occur. Because these symptoms overlap with depression and other difficulties, a clinician asks whether the distress remains organized primarily around separation from the deceased.

School, friendships, sleep, and daily functioning

Possible signs of clinically significant impairment include repeated inability to attend or participate in school, pronounced academic decline, withdrawal from valued relationships, persistent loss-related avoidance, major disruption of daily care, or severe difficulty engaging in developmentally expected activities. Family disruption and poverty after a death can produce similar changes, so assessment should identify practical barriers as well as mental-health symptoms. Sleep disturbance and headaches warrant appropriate medical consideration when indicated.

Ordinary grief and clinical concern: why one symptom is never enough

A bereaved child may cry and then play, seek comfort and later want solitude, speak eagerly about the person and sometimes avoid the topic, or experience setbacks on birthdays and anniversaries. Such movement between engaging with grief and engaging with ongoing life is widely recognized in bereavement research. Grief has no universal sequence of compulsory stages. The appearance of sadness, anger, denial, bargaining, or apparent acceptance cannot establish a diagnostic timeline.

A child can continue to love, remember, and speak with emotional intensity about a deceased person for years while maintaining meaningful relationships and development. Keeping possessions, looking at photos, celebrating birthdays, or retaining a sense of connection may be part of adaptive remembrance. Conversely, a child may seem externally composed while experiencing severe separation distress and impaired functioning. Observation and interview together are therefore more informative than a single outward display.

There is also a difference between knowing that professional support might help and meeting formal PGD criteria. Families can seek help before the minimum diagnostic duration if the young person is suffering, unsafe, unable to function, or facing additional clinical problems.

DSM-5-TR criteria for children and adolescents

The DSM-5-TR specifies that the death of someone close occurred at least six months earlier for a child or adolescent, compared with at least twelve months for an adult. The American Psychiatric Association's PGD overview and the published diagnostic criteria analysis describe this distinction.

The clinician then looks for at least one central symptom: intense yearning or longing for the deceased, or persistent preoccupation with thoughts or memories of that person. In youth, this preoccupation may focus on the death's circumstances. Central symptoms must be present to a clinically significant degree nearly every day for at least the previous month.

DSM-5-TR further requires at least three of eight additional symptoms, likewise at a clinically significant level and nearly every day during at least the preceding month: identity disruption; marked disbelief; avoidance of reminders of the death; intense emotional pain; difficulty reintegrating into relationships and activities; emotional numbness; a sense that life is meaningless; or intense loneliness. The symptom pattern must cause clinically significant distress or impairment and clearly exceed the expected response within the person's social, cultural, or religious context. It also must not be better explained by another disorder, a medical condition, or substance effects. The DSM-5-TR criteria validation paper provides the full structure.

The six-month interval is a minimum eligibility point, not an automatic diagnostic switch. A young person can have intense symptoms seven months after the death and still require a careful evaluation of culture, severity, functional effects, and alternative explanations.

ICD-11 prolonged grief disorder: how the requirements differ

The World Health Organization's ICD-11 describes PGD as a persistent and pervasive grief response with longing for the deceased or persistent preoccupation with the deceased, accompanied by intense emotional pain and meaningful impairment. It recognizes sadness, guilt, anger, blame, difficulty accepting the loss, emotional numbness, identity disturbance, reduced positive emotion, and difficulty engaging in life as possible associated manifestations. The grief response must have persisted for an atypically long period — more than six months at a minimum — and clearly exceed expected social, cultural, or religious norms. This framing is documented in the WHO clinical descriptions and diagnostic requirements and a comparative diagnostic review.

Unlike DSM-5-TR, ICD-11 does not require an explicit count of three out of eight additional symptoms or a universal near-daily frequency rule. Its approach relies more heavily on clinical judgment about the presentation, culturally expected grieving, and significant functional impairment. The ICD-11 description does not set a separate twelve-month adult threshold or the DSM-5-TR's explicitly youth-specific six-month threshold. The systems should not be treated as interchangeable checklists.

The same young person can therefore be classified differently under DSM-5-TR and ICD-11 depending on the assessment method and application of the requirements. A comparison of diagnostic algorithms documents important differences in how cases are identified. The clinician should record which classification and criteria are being used.

What should a comprehensive assessment include?

A developmentally appropriate assessment is a conversation and an integration of information from the young person, caregivers, and relevant settings. It goes well beyond checking symptoms or counting months. The National Child Traumatic Stress Network's assessment guidance describes the value of interviews, standardized measures, behavioral observations, development, and functional impact.

The child's own description

A clinician can ask whom the child misses, what situations are hardest, what they think happened, what reminders bring comfort or pain, what changes they notice in their body or attention, and how school or relationships are going. An interviewer must use language that fits the child's age, intellectual and language development, and familiarity with death. Play, drawing, and examples may support communication, but none independently identifies PGD.

The nature and timeline of the loss

Useful information includes the relationship to the deceased, date and circumstances of death, the child's exposure to the death, what explanations were given, whether funerals or mourning rituals were available, and changes in daily life afterward. Clinicians should ask about earlier deaths and repeated losses, displacement, family conflict, financial stress, and whether the child's caregiving environment has remained predictable.

Caregiver perspectives without replacing the child's voice

Caregivers may notice sleep changes, separation anxiety, withdrawal, or school difficulties that the child cannot describe. Their reports also reflect their own grief and interpretations, so clinicians balance collateral information with the young person's account. The assessment should explore caregiver functioning, remaining support relationships, and whether the child feels safe asking questions. Family participation is especially important when adults manage access to services, school communication, and home routines.

Educational and social functioning

School attendance, concentration, peer relationships, daily tasks, homework, interests, and routines provide observable context. A temporary decline during a period of family disruption has different implications from persistent inability to participate in important activities. Age-related developmental milestones, neurodevelopmental differences, and available accommodations should inform interpretation.

Symptoms, risks, and other possible diagnoses

A full clinical evaluation should consider depression, PTSD, anxiety, separation anxiety, adjustment disorder, substance use, sleep disturbances, relevant medical conditions, and self-harm or suicidal thoughts when appropriate. For each domain, clinicians explore frequency, intensity, triggers, progression, impairment, protective factors, and available support. A young person may have PGD together with another disorder; differential assessment should avoid assuming every symptom has a single cause.

Cultural context and communication

Clinicians should ask the family what grief practices, religious beliefs, communication norms, and expressions of continuing bonds are expected. The meaning of talking to the deceased, maintaining memorial rituals, expressing grief privately, or expecting a lengthy mourning period varies widely. Language differences, migration, discrimination, and access barriers can distort a standardized interview if they are overlooked. Evaluation asks how the response fits the person's context, rather than imposing a single cultural timetable.

Screening instruments: what they can and cannot tell us

Brief questionnaires can help identify elevated symptoms, organize a conversation, and track change over time. They cannot determine the full context of loss, exclude depression or PTSD, establish culturally atypical grieving, or replace a clinical interview. A positive screen means further assessment is appropriate; a negative screen may miss concerns when a child is reluctant to disclose or a measure is poorly matched to age or language.

A systematic review of grief instruments in children and adolescents identified 24 instruments spanning general grief, maladaptive grief, and specialized loss responses. Its authors called for stronger validation, especially for contemporary diagnostic formulations. This is why a measure developed for historical 'complicated grief' or 'persistent complex bereavement disorder' should not automatically be advertised as a DSM-5-TR diagnosis tool.

Inventory of Prolonged Grief for Children (IPG-C)

The IPG-C has been used in pediatric grief research to estimate symptom burden. Its research history predates current DSM-5-TR criteria, so users should check precisely which version, age range, language, and diagnostic construct a study validated. It can inform severity assessment under suitable conditions; it is not an independent diagnostic verdict. The 2025 published instrument review discusses its psychometric evidence and the broader limitations of measurement.

Traumatic Grief Inventory–Kids–Clinician-Administered (TGI-K-CA)

The TGI-K-CA was designed to assess contemporary DSM-5-TR and ICD-11 PGD symptom concepts in bereaved children and adolescents. The 2023 development study used input from experts and young people to improve the comprehensibility of items. Development and content review, however, did not alone establish robust diagnostic accuracy.

An important 2026 initial validation study examined 90 bereaved Dutch youths aged 8–18 and reported mixed psychometric findings. Some items had weak loadings, temporal stability was weak, and the study was small and not broadly representative. Its proposed research cutoffs should not be exported to routine clinical diagnosis or used as a self-test. Larger, culturally diverse validation studies are needed.

PG-13-R and adult-oriented instruments

The PG-13-Revised was developed and evaluated in relation to DSM-5-TR PGD criteria, but major initial validation evidence was based on adults. A pediatric clinician should use developmentally suitable methods rather than assuming that an adult score has the same meaning in an eight-year-old. The original criteria and scale validation offers context but is not a license for automatic pediatric diagnostic use.

How is PGD distinguished from depression, PTSD, and adjustment difficulties?

Diagnosis depends on the pattern and purpose of distress, not simply on a shared symptom such as sleep disturbance, sadness, concentration problems, or withdrawal.

Prolonged grief disorder and major depressive disorder

In PGD, the central emotional pattern concerns the absence of the person who died and the young person's difficulty adapting to that loss. Major depressive disorder can feature persistent depressed or irritable mood, broad loss of pleasure, guilt, hopelessness, and impairment across many parts of life, sometimes with no single bereavement-related focus. Both may coexist, and the presence of longing does not rule out depression. A clinician considers full criteria and safety, including suicidality, for each. For a distinct child-depression assessment, see Depression in Children: Signs, Assessment, and Family Support.

Prolonged grief disorder and PTSD

PTSD may involve intrusive reexperiencing of trauma, threat-based avoidance, hyperarousal, and changes in mood and beliefs following exposure to a traumatic event. PGD emphasizes yearning and separation-related distress. After a violent or sudden death, both may occur. Memories of the deceased can trigger images of how the person died, and traumatic fear can interfere with remembering the relationship in a comforting way. The National Child Traumatic Stress Network describes this interaction in childhood traumatic grief. For the broader trauma diagnosis, read Posttraumatic Stress Disorder (PTSD): Symptoms, Diagnosis, and Treatment.

Prolonged grief disorder and adjustment disorder

Adjustment difficulties can follow stressful life events and may include sadness, anxiety, or impaired daily functioning. A young person adjusting to a death may also experience changes in caregiving, housing, identity, and school. PGD specifically requires a death-related separation-distress pattern and its own classification requirements. Clinicians should consider whether a broader stress-response diagnosis better captures the presentation.

Separation anxiety, developmental difficulties, and medical issues

After bereavement, a child may worry intensely about losing another caregiver and avoid separation. A clinician should consider whether separation anxiety has become a primary concern, whether it overlaps with grief, and whether environmental insecurity is driving behavior. Neurodevelopmental characteristics can change how a child expresses distress and responds to routine disruption. Persistent somatic symptoms, severe insomnia, or other concerning physical changes deserve appropriate medical evaluation as well.

When should parents, caregivers, or teachers seek professional help?

Contact a qualified child or adolescent mental-health professional when grief remains intense and persistent, interferes substantially with relationships or school, involves severe withdrawal or repeated loss-related avoidance, or raises concerns about safety. Earlier consultation can be appropriate even when six months have not elapsed, especially after a traumatic death, multiple losses, severe caregiver disruption, or a major change in functioning.

A practical first appointment might be with a pediatrician, primary-care clinician, school-based mental-health professional, child psychologist, or child and adolescent psychiatrist. The professional can evaluate both the grief and possible co-occurring conditions, discuss whether specialist grief-focused treatment is indicated, and coordinate with caregivers and school staff.

A teacher can describe concrete changes: attendance, participation, performance, behavior, peer relationships, and specific settings that seem difficult. Teachers should avoid diagnosing from those observations. Families can tell school staff what language the child prefers when the deceased person is mentioned and whether particular dates require flexibility.

What treatments have evidence for bereaved children with elevated grief distress?

Treatment planning begins with an assessment of symptoms, developmental needs, family environment, safety, preferences, and co-occurring disorders. Supportive care, practical stability, and compassionate communication matter across the range of grief reactions; structured psychotherapy becomes especially relevant when problems are persistent, severe, and impairing.

A randomized clinical trial of CBT Grief-Help included 134 bereaved children and adolescents with PGD symptoms and compared a grief-focused cognitive behavioral program with nondirective supportive counseling. Both conditions improved, while CBT Grief-Help produced greater reductions in PGD symptoms at follow-up assessments. The program included youth sessions and parallel caregiver sessions. The findings support specialist cognitive behavioral approaches for selected young people, while the study's design and sample do not establish that every bereaved child needs treatment.

A 2024 systematic review and meta-analysis synthesized 39 psychosocial intervention studies involving 5,578 bereaved youths. It found potential benefits, particularly in young people with elevated distress, but noted substantial heterogeneity and weaknesses in the evidence. Improvements in uncontrolled studies may partly reflect the natural course of adjustment. The evidence therefore supports targeted, evaluated interventions more clearly than universal clinical treatment for every grieving child.

Grief-focused cognitive behavioral work may help young people approach painful memories at a manageable pace, address rigid guilt or self-blame, reconnect with meaningful activities, and find ways to remember the deceased while continuing development. Caregiver participation can help adults understand the child's needs and support change outside sessions. For significant trauma symptoms, treatment may also need trauma-focused components. Interventions should be adapted for age, culture, neurodevelopment, and safety.

Medication is not an established stand-alone treatment for pediatric PGD. If a child also has a condition for which medication may be indicated, a qualified clinician should consider that separately, alongside evidence-based psychosocial care. A family should not interpret a grief diagnosis as an automatic reason for a prescription.

What can caregivers do while seeking assessment?

A young person benefits from honest, understandable information about the death, a predictable and emotionally available caregiver, opportunities to ask questions repeatedly, and permission to grieve in their own way. Adults can invite conversation without forcing disclosure. Instead of demanding that a child 'move on,' a caregiver might ask what feels particularly difficult today and whether the child wants company, a story, quiet, or practical help.

Restoring meal times, sleep opportunities, transportation, school attendance, and connection with supportive people can reduce secondary stress. Families may negotiate memorial practices that respect individual differences: one child wants photographs visible, another prefers a private keepsake, and a teen may want to choose when to participate in rituals. Gradual reengagement with friendships and enjoyable activities can coexist with continued remembrance.

Adults who are themselves grieving may need support from other adults. A child should not become the sole person responsible for stabilizing a parent's emotions or managing the household after a loss. Extra help with caregiving, finances, school transitions, and appointments may be as important as symptom-focused intervention.

Safety after traumatic death, suicide loss, or self-harm concerns

Bereavement after suicide, violence, accidents, or other traumatic circumstances can involve grief, fear, shame, anger, intrusive images, and practical crises. Ask about exposure to frightening events and how the story of the death was explained. Avoid assuming that a particular type of death inevitably produces PGD, PTSD, or suicidal behavior.

If a child says they wish they were dead, want to join the deceased, intend to harm themselves, or feel unable to stay safe, ask directly and calmly what they mean and whether they have thoughts, intent, a plan, or access to means. Do not dismiss the statement as 'just grief.' The American Academy of Child and Adolescent Psychiatry advises immediate evaluation of children and adolescents with suicidal thoughts, plans, or warning signs. If danger is imminent, stay with the young person, reduce access to dangerous means where it can be done safely, and contact local emergency services or an emergency department. For a non-immediate concern, arrange urgent professional assessment and collaborative safety planning.

A clinician should distinguish a child's figurative wish for reunion from active suicidal intent while taking every concerning statement seriously. These assessments require direct conversation and ongoing support, not an interpretation based on a website checklist.

How common is prolonged grief disorder among bereaved youth?

A 2024 systematic review found prevalence estimates ranging from 10.4% to 32% across five pediatric studies, with marked limitations in the available literature and assessment methods. Those figures are a range from selected study samples, not the probability that any newly bereaved child will develop PGD. Differences in measures, timing, settings, and case definitions make simplistic population claims misleading.

The same review identified associations involving chronic stressors, cognitive avoidance, trauma exposure, and other factors, with social support potentially protective. Associations are not individual predictions or proof of causation. The quality of caregiver relationships, available services, and practical living conditions can substantially shape what an individual assessment uncovers.

Questions families commonly ask

Can a child have prolonged grief disorder before six months?

Under DSM-5-TR, a PGD diagnosis in a child or adolescent requires that at least six months have passed since the death. A child can still need prompt support earlier for severe grief, depression, traumatic stress, dangerous behavior, or other problems. A clinician evaluates those concerns on their own terms.

Does a grieving child need to be sad all the time?

No. Children may alternate between distress, play, curiosity, affection, laughter, and ordinary routines. The diagnostic question concerns the persistent central symptom pattern, associated features, distress or impairment, and cultural context, not an uninterrupted sad appearance.

Is an adolescent who continues talking about a deceased parent showing PGD?

Speaking about the person, preserving memories, or commemorating them can be healthy. Clinicians investigate whether the adolescent also has severe, persistent separation distress and marked difficulties in important areas of life. Continuing bonds are not themselves a symptom or diagnostic threshold.

Can PGD and PTSD occur together?

Yes. Some bereaved young people experience both separation-related distress and trauma-related fear or reexperiencing. The assessment should identify both patterns and determine which interventions are appropriate.

Can school problems alone establish the disorder?

No. School difficulties have numerous explanations after a death, including family changes, sleep problems, financial barriers, depression, PTSD, and ordinary temporary disruption. School observations can inform a clinical assessment but cannot establish PGD by themselves.

What if a young person refuses to answer an assessment questionnaire?

Refusal may reflect distress, mistrust, developmental needs, fatigue, uncertainty about confidentiality, or the meaning of specific questions. A clinician can explain the purpose, offer developmentally appropriate ways to participate, build trust, and gather collateral information. An unanswered questionnaire is not a diagnosis.

Does a high TGI-K-CA score confirm PGD?

No. The instrument has promising uses in research but a 2026 validation study identified important limitations. Scores must be interpreted with age, culture, interview evidence, impairment, and the chosen diagnostic system. Research cutoffs are not universal diagnostic tests.

Can parental support replace specialized treatment?

Supportive caregiving is central, and many grieving children need no specialized therapy. When clinically significant, persistent impairment is present, specialist assessment can determine whether grief-focused psychotherapy or treatment of a co-occurring disorder would help. Family support and professional treatment can work together.

The central assessment principle

The appropriate response to persistent grief in a child is a developmentally informed clinical assessment that brings together the child's voice, the history of the death, symptom pattern, functional effects, caregiver and school observations, risk and protective factors, cultural context, and alternative explanations. DSM-5-TR and ICD-11 provide specific diagnostic frameworks; neither replaces the judgment needed to understand this particular young person.

Related Articles

Prolonged Grief Disorder: Symptoms and Diagnosis — Diagnostic criteria and the general clinical framework.

Depression in Children: Signs, Assessment, and Family Support — Understanding developmental presentations of depression and how clinicians evaluate them.

Posttraumatic Stress Disorder (PTSD): Symptoms, Diagnosis, and Treatment — The trauma-related symptom pattern and treatment context.

Trauma Recovery: Rebuilding Safety and Function After Trauma — Approaches to safety, functioning, and recovery following stressful events.

Grief After a Parent Dies in Childhood: Development and Support — Parental death during childhood, family security, developmental grief, and research-based support.

References

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American Psychiatric Association. Prolonged Grief Disorder. Official clinical overview.

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Eisma, M. C. (2023). Prolonged grief disorder in ICD-11 and DSM-5-TR: Challenges and controversies. Australian & New Zealand Journal of Psychiatry, 57, 944–951. DOI: 10.1177/00048674231154206.

Falala, A., Lannes, A., Bui, E., & Revet, A. (2024). Prevalence of prolonged grief disorder in bereaved children and adolescents: A systematic review. L'Encéphale, 50, 557–565. DOI: 10.1016/j.encep.2023.11.016.

Hanauer, C., Telaar, B., Rosner, R., & Doering, B. K. (2024). The efficacy of psychosocial interventions for grief symptoms in bereaved children and adolescents: A systematic review and meta-analysis. Journal of Affective Disorders, 350, 164–173. DOI: 10.1016/j.jad.2024.01.063.

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National Child Traumatic Stress Network. Screening and Assessment. Official resource.

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van Dijk, I., Boelen, P. A., de Keijser, J., & Lenferink, L. I. M. (2026). Initial Validation of a Measure Assessing DSM-5-TR and ICD-11 Prolonged Grief in Children and Adolescents. Journal of Child & Adolescent Trauma, 19, 1111–1123. DOI: 10.1007/s40653-026-00820-7.

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